Accessibility Statement Skip Navigation
  • Resources
  • Blog
  • Journalists
  • +44 (0)20 7454 5110
  • Client Login
  • Send a Release
Return to PR Newswire homepage
  • News
  • Products
  • Contact
When typing in this field, a list of search results will appear and be automatically updated as you type.

Searching for your content...

No results found. Please change your search terms and try again.
  • News in Focus
      • Browse News Releases

      • All Public Company News
      • All Multimedia News
      • View All News Releases

      • Regulatory News

      • D/A/CH Regulatory News
      • UK Regulatory News
      • View All Regulatory News

  • Business & Money
      • Auto & Transportation

      • Aerospace & Defense
      • Air Freight
      • Airlines & Aviation
      • Automotive
      • Maritime & Shipbuilding
      • Railroads & Intermodal Transportation
      • Supply Chain/Logistics
      • Transportation, Trucking & Railroad
      • Travel
      • Trucking & Road Transportation
      • View All Auto & Transportation

      • Business Technology

      • Blockchain
      • Broadcast Tech
      • Computer & Electronics
      • Computer Hardware
      • Computer Software
      • Data Analytics
      • Electronic Commerce
      • Electronic Components
      • Electronic Design Automation
      • Financial Technology
      • High Tech Security
      • Internet Technology
      • Nanotechnology
      • Networks
      • Peripherals
      • Semiconductors
      • View All Business Technology

      • Entertain­ment & Media

      • Advertising
      • Art
      • Books
      • Entertainment
      • Film & Motion Picture
      • Magazines
      • Music
      • Publishing & Information Services
      • Radio & Podcast
      • Television
      • View All Entertain­ment & Media

      • Financial Services & Investing

      • Accounting News & Issues
      • Acquisitions, Mergers & Takeovers
      • Banking & Financial Services
      • Bankruptcy
      • Bond & Stock Ratings
      • Conference Call Announcements
      • Contracts
      • Cryptocurrency
      • Dividends
      • Earnings
      • Earnings Forecasts & Projections
      • Financing Agreements
      • Insurance
      • Investments Opinions
      • Joint Ventures
      • Mutual Funds
      • Private Placement
      • Real Estate
      • Restructuring & Recapitalisation
      • Sales Reports
      • Shareholder Activism
      • Shareholder Meetings
      • Stock Offering
      • Stock Split
      • Venture Capital
      • View All Financial Services & Investing

      • General Business

      • Awards
      • Commercial Real Estate
      • Corporate Expansion
      • Earnings
      • Environmental, Social and Governance (ESG)
      • Human Resource & Workforce Management
      • Licensing
      • New Products & Services
      • Obituaries
      • Outsourcing Businesses
      • Overseas Real Estate (non-US)
      • Personnel Announcements
      • Real Estate Transactions
      • Residential Real Estate
      • Small Business Services
      • Socially Responsible Investing
      • Surveys, Polls & Research
      • Trade Show News
      • View All General Business

  • Science & Tech
      • Consumer Technology

      • Artificial Intelligence
      • Blockchain
      • Cloud Computing/Internet of Things
      • Computer Electronics
      • Computer Hardware
      • Computer Software
      • Consumer Electronics
      • Cryptocurrency
      • Data Analytics
      • Electronic Commerce
      • Electronic Gaming
      • Financial Technology
      • Mobile Entertainment
      • Multimedia & Internet
      • Peripherals
      • Social Media
      • STEM (Science, Tech, Engineering, Math)
      • Supply Chain/Logistics
      • Wireless Communications
      • View All Consumer Technology

      • Energy & Natural Resources

      • Alternative Energies
      • Chemical
      • Electrical Utilities
      • Gas
      • General Manufacturing
      • Mining
      • Mining & Metals
      • Oil & Energy
      • Oil & Gas Discoveries
      • Utilities
      • Water Utilities
      • View All Energy & Natural Resources

      • Environ­ment

      • Conservation & Recycling
      • Environmental Issues
      • Environmental Policy
      • Environmental Products & Services
      • Green Technology
      • Natural Disasters
      • View All Environ­ment

      • Heavy Industry & Manufacturing

      • Aerospace & Defence
      • Agriculture
      • Chemical
      • Construction & Building
      • General Manufacturing
      • HVAC (Heating, Ventilation & Air-Conditioning)
      • Machinery
      • Machine Tools, Metalworking & Metallurgy
      • Mining
      • Mining & Metals
      • Paper, Forest Products & Containers
      • Precious Metals
      • Textiles
      • Tobacco
      • View All Heavy Industry & Manufacturing

      • Telecomm­unications

      • Carriers & Services
      • Mobile Entertainment
      • Networks
      • Peripherals
      • Telecommunications Equipment
      • Telecommunications Industry
      • VoIP (Voice over Internet Protocol)
      • Wireless Communications
      • View All Telecomm­unications

  • Lifestyle & Health
      • Consumer Products & Retail

      • Animals & Pets
      • Beers, Wines & Spirits
      • Beverages
      • Bridal Services
      • Cannabis
      • Cosmetics & Personal Care
      • Fashion
      • Food & Beverages
      • Furniture & Furnishings
      • Home Improvement
      • Household, Consumer & Cosmetics
      • Household Products
      • Jewellery
      • Non-Alcoholic Beverages
      • Office Products
      • Organic Food
      • Product Recalls
      • Restaurants
      • Retail
      • Supermarkets
      • Toys
      • View All Consumer Products & Retail

      • Entertain­ment & Media

      • Advertising
      • Art
      • Books
      • Entertainment
      • Film & Motion Picture
      • Magazines
      • Music
      • Publishing & Information Services
      • Radio & Podcast
      • Television
      • View All Entertain­ment & Media

      • Health

      • Biometrics
      • Biotechnology
      • Clinical Trials & Medical Discoveries
      • Dentistry
      • FDA Approval
      • Fitness/Wellness
      • Health Care & Hospitals
      • Health Insurance
      • Infection Control
      • International Medical Approval
      • Medical Equipment
      • Medical Pharmaceuticals
      • Mental Health
      • Pharmaceuticals
      • Supplementary Medicine
      • View All Health

      • Sports

      • General Sports
      • Outdoors, Camping & Hiking
      • Sporting Events
      • Sports Equipment & Accessories
      • View All Sports

      • Travel

      • Amusement Parks & Tourist Attractions
      • Gambling & Casinos
      • Hotels & Resorts
      • Leisure & Tourism
      • Outdoors, Camping & Hiking
      • Passenger Aviation
      • Travel Industry
      • View All Travel

  • Policy & Public Interest
      • Policy & Public Interest

      • Animal Welfare
      • Corporate Social Responsibility
      • Economic News, Trends & Analysis
      • Education
      • Environmental
      • European Government
      • Labour & Union
      • Natural Disasters
      • Not For Profit
      • Public Safety
      • View All Policy & Public Interest

  • People & Culture
      • People & Culture

      • Aboriginal, First Nations & Native American
      • African American
      • Asian American
      • Children
      • Diversity, Equity & Inclusion
      • Hispanic
      • Lesbian, Gay & Bisexual
      • Men's Interest
      • People with Disabilities
      • Religion
      • Senior Citizens
      • Veterans
      • Women
      • View All People & Culture

  • Overview
  • Distribution
  • Paid Placement
  • Multichannel Amplification
  • Disclosure Services
  • SocialBoost
  • Rooms
    • MediaRoom
    • ESG Rooms
  • AI Tools
  • General Enquiries
  • Media Enquiries
  • Partnerships
  • Hamburger menu
  • Cision PR Newswire UK provides press release distribution, targeting, monitoring, and marketing services
  • Send a Release
    • Phone

    • +44 (0)20 7454 5110 from 8 AM - 5:30 PM GMT

    • ALL CONTACT INFO
    • Contact Us

      +44 (0)20 7454 5110
      from 8 AM - 5:30 PM GMT

  • Client Login
  • Send a Release
  • Resources
  • Blog
  • Journalists
  • News in Focus
    • Browse News Releases
    • Regulatory News
  • Business & Money
    • Auto & Transportation
    • Business Technology
    • Entertain­ment & Media
    • Financial Services & Investing
    • General Business
  • Science & Tech
    • Consumer Technology
    • Energy & Natural Resources
    • Environ­ment
    • Heavy Industry & Manufacturing
    • Telecomm­unications
  • Lifestyle & Health
    • Consumer Products & Retail
    • Entertain­ment & Media
    • Health
    • Sports
    • Travel
  • Policy & Public Interest
    • Policy & Public Interest
  • People & Culture
    • People & Culture
  • Client Login
  • Send a Release
  • Resources
  • Blog
  • Journalists
  • Overview
  • Distribution
  • Paid Placement
  • Multichannel Amplification
  • Disclosure Services
  • Cision Communications Cloud®
  • AI Tools
  • Client Login
  • Send a Release
  • Resources
  • Blog
  • Journalists
  • General Enquiries
  • Media Enquiries
  • Partnerships
  • Client Login
  • Send a Release
  • Resources
  • Blog
  • Journalists

New Coalition PFMD Urges Global Partnership on Patient Engagement in Medicines Development


News provided by

PFMD

23 Oct, 2015, 07:55 GMT

Share this article

Share toX

Share this article

Share toX

BRUSSELS, October 23, 2015 /PRNewswire/ --

A new coalition launched this week 23rd of October is urging all stakeholders in the medicines research and development pathway to work together to take a truly global approach to patient involvement.

Significant progress is being made which is changing the face of patient engagement; however there is still a need to build on this to develop a universal approach. The process of developing new medicines is essentially global, but today the many initiatives seeking patient engagement and involvement in this process are not harmonized. This lack of harmonization has been identified as a critical challenge to effective patient involvement. The Patient Focused Medicine Development (PFMD) coalition has been established to move beyond identification of barriers towards practical solutions, and is calling on all stakeholders to get involved in order to catalyze global patient engagement.

PFMD is a joint initiative of the patient community and industry that aims to make medicines research and development more patient-centric. PFMD is a non-profit trans-Atlantic coalition whose founders include representatives from the European Patients Forum (EPF), the National Health Council (NHC), the European Patient Academy on Therapeutic Innovation (EUPATI), the Parkinson's Disease Foundation (PDF), CANCER101 Foundation (C101), the Society for Participatory Medicine as well as Amgen, AstraZeneca, GSK, MSD, Pfizer and UCB.

PFMD is now inviting stakeholders across medicines R & D - including patients and patient organizations, regulators and payers, academia and industry - to work together in a global, inclusive and pre-competitive environment. PFMD have already identified key priority areas where they aim to make tangible progress within a realistic 3-4 year timescale. These include development of a framework for patient engagement; addressing cultural, educational and communication barriers; and sharing best practices.

'The increasing number and scope of initiatives for patient engagement highlights the common belief of its importance and the value of working in partnership with patient advocacy groups / patient organizations. What is currently missing is a systematic and global approach for this engagement that encompasses the entire medicines R & D pathway. PFMD brings together stakeholders to identify synergies and common priorities so that we are not duplicating efforts but learning from one another what works and why. We aim to develop a solution-focused framework for effective patient engagement that meets the needs of all stakeholders by ensuring wide stakeholder involvement from the outset,' said PFMD member Tony Hoos, Head of Medical for Amgen in Europe.

The framework will drill down to critical success factors for effective patient engagement and address issues such as the type and timepoints of engagement, key stakeholders at each timepoint, and skills or knowledge required. The framework will also tackle practical, legal and regulatory considerations.

PFMD believes that addressing cultural and communication challenges is key to driving effective patient engagement. 'We know that there are significant cultural barriers that exist but these are not insurmountable. We need to recognize and overcome challenges and perceptions such as the 'scientific robustness' of patient engagement strategies, the potential financial risks or investment required and organizational challenges including resistance to change, scepticism and environmental uncertainties. By calling on all stakeholders to participate in this initiative we will be truly inclusive and representative. We will better understand and be able to address cultural challenges that impact common goals for patient engagement,' said PFMD member Marc Boutin, Chief Executive Officer of the NHC.

PFMD will also be working together to drive a culture change towards better communication and collaboration across different initiatives. 'This is an exciting time for patient engagement where we are seeing real progress. Joining PFMD and communicating widely will really accelerate this progress for the benefit of all stakeholders,' said PFMD member Murray Stewart, GSK's Chief Medical Officer. "There is a lot of good quality work out and there and we need to pull these together to identify and share good practice, assess unmet needs and develop practical solutions to meet those needs. This will rely on open and honest communication between individuals and organisations." Master Classes on patient engagement for all stakeholders aimed at comprehensive sharing of best practices as they emerge are already being planned.

With resources now in place to kick-start priority projects, PFMD is opening up membership to other organizations and individuals willing to actively contribute towards shared goals. 'This is a real opportunity to catalyze global patient engagement in the development of new medicines. The more stakeholders that are actively involved, the more we can reach true consensus and define the future landscape for patient involvement. With wide stakeholder involvement, PFMD will be ideally placed to give direction and guidance for patient engagement and will be a fertile breeding ground for innovative ideas and initiatives that will have a lasting impact,' said Tony Hoos.

Notes for Editors  

PFMD is inviting participation from stakeholders in medicines R & D including: patients/patient organisations/patient advocacy groups, industry, regulators, purchasers of medicines (including pharmacies and hospitals), healthcare professionals including academic and community-based researchers, physicians and nurses, politicians and legal advisors, health technology assessment (HTA) agencies, and topic-related think-tanks.

The daily activities of PFMD are coordinated by The Synergist based in Brussels, Belgium. The Synergist is a social enterprise incubator of people-public-private partnerships, a not-for-profit organization that offers a new approach to solving societal issues, by bringing together diverse stakeholders to build shared value and drive real change. The Synergist believes that creating shared value and addressing common causes underlying key concerns can achieve greater results. The Synergist partners with corporations, influencers, experts, academics, individuals, medical professionals, patients, and NGOs who share the same philosophy.  The group acts an incubator and leads various projects including implementation of strategy, management, communication, technical development and fundraising.

http://www.PFMD.org

Modal title

Contact PR Newswire

  • +44 (0)20 7454 5110
    from 8 AM - 5:30 PM GMT
  • General Enquiries
  • Media Enquiries
  • Partnerships

Products

  • Content Distribution
  • Multimedia Services
  • Disclosure Services
  • Cision Communications Cloud®

About

  • About PR Newswire
  • About Cision
  • Partnering Opportunities
  • Careers
  • Accessibility Statement
  • APAC
  • APAC - Simplified Chinese
  • APAC - Traditional Chinese
  • Brazil
  • Canada
  • Czech
  • Denmark
  • Finland
  • France
  • Germany
  • India
  • Indonesia
  • Israel
  • Japan
  • Korea
  • Mexico
  • Middle East
  • Middle East - Arabic
  • Netherlands
  • Norway
  • Poland
  • Portugal
  • Russia
  • Slovakia
  • Spain
  • Sweden
  • United States
  • Vietnam

My Services

  • All News Releases
  • Customer Portal
  • Resources
  • Blog
  • Journalists
  • Data Privacy

Do not sell or share my personal information:

  • Submit via Privacy@cision.com 
  • Call Privacy toll-free: 877-297-8921

Contact PR Newswire

Products

About

My Services
  • All News Releases
  • Customer Portal
  • Resources
  • Blog
  • Journalists
+44 (0)20 7454 5110
from 8 AM - 5:30 PM GMT
  • Terms of Use
  • Privacy Policy
  • Information Security Policy
  • Site Map
  • RSS
  • Cookie Settings
Copyright © 2025 PR Newswire Europe Limited. All Rights Reserved. A Cision company.